Dementia Services

Dementia Services provides assistance across the Commonwealth to persons with Alzheimer's disease and other forms of dementia, and their caregivers. The primary role of Dementia Services is to monitor the development and implementation of Virginia's Dementia State Plan by coordinating, facilitating, and supporting the activities of the Alzheimer's Disease and Related Disorders Commission. Additional functions include:

  • Disseminating information
  • Coordinating services and activities
  • Identifying interdisciplinary memory assessment centers

Dementia resources to help individuals and families, and to support health care and community services providers, are on the new Dementia Capable Virginia page. For an overview of dementia, links to home and community-based service providers, non-DARS trainings, grant providers or data sources, please click here.


Covid-19 and Dementia

The Covid-19 pandemic and resulting changes to social behavior can have special challenges for those living with Alzheimer's disease or another form of dementia, and for those caring for them. Up-to-date information and resources to help meet those challenges is available at the Alzheimer’s Association.


Dementia Services Coordinator

The Dementia Services Coordinator position was established in *2013 in response to Goal 1, Objective A of Virginia's first Dementia State Plan, published in 2011.

"Create a position and obtain specific funding to hire a full time Dementia Services Coordinator (DSC) to coordinate the services provided to persons with Alzheimer's disease and Related Dementia working in conjunction with the Alzheimer's Commission."

This position oversees Virginia's dementia-capability by recommending policy and coordinating statewide data collection, research and analysis; and training and awareness efforts in conjunction with the Alzheimer's Disease and Related Disorders Commission:

  1. The DSC shall disseminate information on systems, services and related activities for individuals with Alzheimer's disease and related dementias, to the medical and healthcare community, academic community, primary family caregivers, advocacy associations, and the general public.
  2. The DSC shall coordinate services and activities of state and local agencies, service providers, advocacy groups, first responders and law enforcement, as well as other entities throughout the state that engage the person with dementia and caregivers, specifically the Alzheimer's Association, Area Agencies on Aging (AAAs), and Adult Protective Services (APS).
  3. The DSC shall coordinate and provide support for Commission activities.
  4. The DSC shall continue to identify interdisciplinary memory assessment centers, share information about them with consumers, and provide professional development opportunities for center staff.

Requests for information or collaboration can be directed to:

George Worthington
Dementia Services Coordinator
Virginia Department for Aging and Rehabilitative Services
Division for Community Living
1610 Forest Ave, Suite 100
Henrico, VA 23229
Phone: (804) 662 - 9154
Email: George.Worthington@dars.virginia.gov

* George Worthington would like to acknowledge and sincerely thank Charlotte Arbogast and Devin Bowers, Virginia's two previous Dementia Services Coordinators. Their hard work, dedication, and many accomplishments laid a vital foundation for changing and improving dementia services in the Commonwealth of Virginia.


Alzheimer's Disease and Related Disorders Commission

The Alzheimer's Disease and Related Disorders (ADRD) Commission was established in 1982. The 15 appointed members, who advise the Governor and General Assembly, meet quarterly and prepare an annual report with recommendations and activities. In addition, the ADRD Commission produces Virginia's Dementia State Plan and works to implement the five goals of the plan through the activities of three work groups. All ADRD Commission and work group meetings are open to the public and can be found on the Commonwealth Calendar. For additional information, including a list of current members, the ADRD Commission's annual report, notice of upcoming meetings, agendas, and minutes from past meetings, please click here.

Coordinated Care Work Group
Goal 1: Coordinate Quality Dementia Services in the Commonwealth to Ensure Dementia-Capability
Goal 4: Provide Access to Quality Coordinated Care for Individuals with Dementia in the Most Integrated Setting

Training Work Group
Goal 3: Increase Awareness and Create Dementia Specific Training

Data and Research Work Group
Goal 2: Use Dementia Related Data to Improve Public Health
Goal 5: Expand Resources for Dementia Specific Translational Research and Evidence-Based Practices

AlzPossible

The Alzheimer's Disease and Related Disorders (ADRD) Commission co-sponsors a website (www.alzpossible.org) that is accessible to Virginia citizens who wish to learn more about the Commonwealth's commitment to those affected by Alzheimer's disease and other forms of dementia, and their caregivers. This website contains information which can assist both family members and community service providers, including free educational webinars, links to resources, data on dementia, and dementia care best practices.

AlzPossible also hosts a current listing of identified interdisciplinary memory assessment centers in Virginia and surrounding states. Visit the website to find the nearest center to you, if seeking care for yourself, a client, patient, or loved one experiencing memory issues.


Dementia State Plan 2024-2027 *NEW!*

The Virginia Alzheimer's Disease and Related Disorders Commission has released the Virginia Dementia State Plan 2024-2027: Building a Dementia Capable Virginia. Reflecting new knowledge and understanding of brain health and the risk factors for Alzheimer's disease and other dementias, the Plan contains a new Goal 6: Brain Health and Dementia Risk Reduction. This is the first new goal since the Plan was created in 2011, and mirrors a similar change in theNational Plan to Address Alzheimer's Disease. The other five goals address statewide coordination, data collection, workforce and caregiver training, care coordination and research. Each goal contains objectives and strategies that are new or updated to reflect new knowledge and to build on previous accomplishments. The new Plan also fully incorporates the Center for Disease Control and Prevention's (CDC)Healthy Brain Initiative Roadmap and links the Roadmap activities directly to the objectives of Virginia's Plan. The Plan serves as a blueprint for a dementia-capable Virginia that is ready to meet the challenge of the rising numbers of citizens of the Commonwealth living with dementia or caring for individuals living with dementia. If you are interested in helping move the Plan forward, please contact the Dementia Services Coordinator on dementia@dars.virginia.gov or 804 662 9154.


VGCOA Webinar:
Virginia's New Dementia State Plan 2024-2027: Elevating Prevention ADRD Commission Chair Lana Sargent and DARS Dementia Services Coordinator George Worthington presented a webinar for the Virginia Governor's Conference on Aging (VGCOA) on February 27, 2024. You can view the recording here.


The Commission updates the Plan every four years. Here are links to the four Plans released since 2011:


Dementia-related Data for Virginia

Goal 3 of the Dementia State Plan calls for the collection and distribution of accurate data on the prevalence of Alzheimer’s disease and other dementias across the Commonwealth. This data helps inform policy formulation and planning to meet present and future needs. There is no single source of data that provides a complete picture of dementia in Virginia, so it is important to look at several different measures, each of which provides insights into the overall situation. The Dementia Services Coordinator periodically conducts an inventory of dementia-related data collected by state agencies, and these are detailed in two reports: Dementia and Cognitive Impairment: Interagency Collaborative Data Collection Efforts (2014) and Dementia and Cognitive Impairment: Interagency Collaborative Data Collection Efforts (2019). These documents describe various data sources and discuss their strengths and limitations. DARS would like to thank all the state agencies, experts and advocates who contributed to the development of these reports.

Data from other sources (below) also helps describe the state of dementia in Virginia. Click here for even more dementia-related data.


Behavioral Risk Factor Surveillance System (BRFSS)

Every year, the Virginia Department of Health conducts the BRFSS survey, part of a national effort to monitor health overseen by the Centers for Disease Control and Prevention (CDC). The survey consists of core and optional modules. Periodically, states ask the Cognitive Decline and Caregiver optional modules to provide insights into the number of people living with cognitive changes and the impact of those on their daily lives, and into the number of people providing care for others and the duration and intensity of that care. Virginia has included these optional modules in several recent years: Cognitive Decline in 2012, 2013, 2015, and 2019, and Caregiving in 2013, 2015 and 2019. The goal is to ask these every three to four years. You can find more information about these optional modules here.


The CDC and the Alzheimer’s Association have created infographics of the data:

CDC Infographic Alzheimer’s Association Infographic
Cognitive Decline 2015, 2019 2015, 2019
Caregiving 2015, 2019 2015, 2019

Centers for Medicare and Medicaid Services (CMS):

County level data is available for beneficiaries of fee-for-service (traditional) Medicare with a diagnosis of Alzheimer’s Disease or a related dementia (ADD). These data are available annually from 2011 through 2018, and a map of the latest data is also available. For the full dataset, please contact the Dementia Services Coordinator on George.worthington@dars.virginia.gov or 804-662-9154.

Alzheimer’s Association Facts and Figures

Every year, the Alzheimer’s Association publishes Alzheimer’s Disesase Facts and Figures detailing the state of Alzheimer’s disease and other dementias in the United States and provides infographics for each state. You can find the infographic for 2022 here.


Brain Health Virginia

Brain Health Virginia is a partnership between the Alzheimer’s Disease and Related Disorders Commission, the Virginia Department of Health, the Alzheimer’s Association, and the Virginia Department for Aging and Rehabilitative Services. This webpage was created to help achieve the following objectives:

  • Educate health care providers on the importance of early detection and timely diagnosis of cognitive impairment, validated cognitive assessment tools, and the value of a Medicare Annual Wellness visit for cognitive health.
  • Conduct culturally-appropriate public health campaigns to increase understanding and awareness of early warning signs of Alzheimer’s disease and other types of dementia, and the value of early detection and diagnosis.

These objectives were inspired by the Healthy Brain Initiative, launched by the Centers for Disease Control and Prevention and the Alzheimer’s Association in 2013. The initiative is both a call to action and a guide for implementing an effective, coordinated approach to moving brain health into the public health spotlight.

To visit the Brain Health Virginia webpage click here or download the Brain Health pdf.

 

Dementia Friends Virginia

logo Dementia Friends is a global movement that is changing the way people think, act, and talk about dementia. Developed by the Alzheimer's Society in the United Kingdom, the Dementia Friends initiative to increase awareness and understanding of dementia, and reduce the associated stigma, is underway in Virginia.  DARS and LeadingAge Virginia are the co-leads for this initiative, and offer free Dementia Friends Champion training sessions to train Dementia Friends Champions to deliver the interactive and engaging Dementia Friends information sessions in your community. To find out more about Dementia Friends information sessions or the Champion trainings, please visit Dementia Friends Virginia

Federal Grants

In 2018, the Department for Aging and Rehabilitative Services completed two federal grants awarded by the Administration for Community Living.

Funding Opportunity: Alzheimer's Disease Initiative: Specialized Supportive Services Project
Funding Period: September 2015 - August 2018
Project Title: A Dementia-Capable Virginia: Virginia Dementia Specialized Supportive Services Project
Total Approved Budget: $1,297,051

The goal of this project is to enhance Virginia's dementia-capability by providing efficient, effective coordination of services and promote education and well-being for persons with dementia and their caregivers. This is being achieved through the implementation of a Care Coordination Program (CCP) and the Effective Strategies Program (ESP). The CCP provides care management and coordination in addition to resources for persons newly diagnosed with cognitive impairment. The ESP is an educational workshop that educates participants about dementia and teaches them skills to cope with and manage their disease. For additional information please review the materials provided below. Partners include the University of Virginia Memory and Aging Care Clinic and the Jefferson Area Board for Aging.

News Release

Funding Opportunity: Alzheimer's Disease Supportive Services Program
Funding Period: September 2016 – August 2018
Project Title: A Dementia-Capable Virginia: Expanding FAMILIES
Total Approved Budget: $510,020

The goal of this project is to expand access to the FAMILIES program statewide. Telehealth resources will be used to expand delivery of the program to rural areas and availability of in-person participation will be increased in certain regions. View the fliers below for additional information and eligibility requirements. Partners include the University of Virginia Memory and Aging Care Clinic and Center for Telehealth: Office of Telemedicine, Greater Richmond Chapter of the Alzheimer’s Association, Senior Connections, Riverside Center for Excellence in Aging and Lifelong Health, Southeastern Virginia Chapter of the Alzheimer’s Association, Catholic Charities of Eastern Virginia, Bay Rivers Telehealth Alliance, Bay Aging, and Senior Services of Southeastern Virginia.

News Release

Questions or requests for additional information can be directed to:

George Worthington
Dementia Services Coordinator
Virginia Department for Aging and Rehabilitative Services
Division for Community Living
1610 Forest Ave, Suite 100
Henrico, VA 23229
Phone: (804) 662 - 9154
Email: George.Worthington@dars.virginia.gov